Patient-Led Research Collaborative | Patient-Led Research Fund (PLRF) 2025 Webinar

Patient-Led Research Fund Webinar 2025 | Aligning community needs with research priorities

Hear the results and latest progress from the 10 studies funded by the Patient-Led Research Fund — biomedical research projects selected by a panel of patient-researchers with both scientific expertise and lived experience of Long COVID and/or ME/CFS.

Circulate our menu of services to researchers and partners:
https://patientresearchcovid19.com/plrc-advisory-services/

Please consider supporting our work or start your own PLRC fundraiser:
https://patientresearchcovid19.com/donate/
————————————————————————————————————

00:00 – Introduction
03:30 – About the Patient-Led Research Fund
12:55 – Agenda
13:10 – Braeden Charlton, PhD – Skeletal Muscle Abnormalities in Long COVID
23:35 – Q&A
25:45 – Caroline Dalton, PhD – Fibrinaloid microclot quantification in plasma from people with Long COVID and ME/CFS
37:25 – Q&A (Patient Rep: Michael Natt)
42:20 – Liisa Selin, MD, PhD – Altered T cell responses in Long COVID (PASC) and ME/CFS
55:20 – Q&A (Patient Rep: Megan Fitzgerald)
57:25 – David Esteban, PhD – Alterations in tryptophan metabolism in the gut microbiome of people with ME/CFS and Long COVID
1:09:55 – Q&A (Patient Rep: Tess Falor, PhD)
1:11:00 – Megan Fitzgerald, PhD – Nothing for us without us: aligning research funding with patient priorities
1:23:38 – Break
1:23:50 – Return
1:24:25 – Roshan Kumar, PhD – T cell dysregulation revealed by single-cell profiling of ME/CFS and Long COVID patients
1:35:50 – Q&A
1:38:35 – Per Sjögren, MD& Bo C Bertilson, MD – Surgery for foraminal stenosis in ME/CFS
1:49:35 – Q&A (Patient Rep: Tess Falor, PhD)
1:55:20 – Wenzhong Xiao, PhD – Systems Biology Approaches to Uncovering Disease Mechanism and Drug Repurposing for Long COVID
2:10:25 – Q&A (Patient Rep: Becky Taurog, PhD, Chimére L. Sweeney)
2:16:55 Alain Moreau, PhD – Epigenomics of Long COVID: Insights, Breakthroughs, and Emerging Hope.
2:29:05 – Q&A
2:31:15 – Break
2:31:39 – Return
2:31:50 – Janet Mullington, PhD – Characterizing non-restorative sleep in post-viral disease to advance intervention innovations
2:44:35 – Q&A (Patient Rep: Letícia Soares, PhD)
2:47:53 – Michael Peluso, MD – Monoclonal antibodies in Long COVID: what needs to happen next
3:01:30 – Moderated by Julia Moore Vogel with Liisa Selin, Janet Mullington, & Roshan Kumar (research grantees), Anisha Sekar (patient rep), and Hannah Davis (PLRF admin) – Advancing Long COVID Research: The Power of Patient-Centered Science and Patient-Driven Funding
3:18:37 – Closing Remarks

Category: News
About The Author
-